Fun stuff

Fun stuff, here are a couple videos of what we have been up to. We are super sad our dear friends and neighbors moved yesterday, the Myers, the little girl with Kaden is their daughter, Annabelle, they made the game up themselves. The other video is of Ethan with his "manual wheelchair" he is just supposed to try it out to see if he is even interested in pushing himself.

Another fun day in the hospital

So Ethan went in Monday morning, he was supposed to get his trach hole closed, but, and that is a big but, the doctor found scar tissue in his trachea, or windpipe. This meant if she closed it he would not be able to breath well, she said the size of his windpipe is the size of a newborns. Therefore she wants to wait six months, see if the size has increased because he will have grown, and if not they will have to do airway reconstructive surgery. So needless to say, we generally are disappointed, but its the way it has to be. They at least were able to botox his saliva glands(that is supposed to help stop drooling, because he has excessive drool!). We will see if it helps in the next couple weeks. Now all my plans for the year with no trach hole are shattered, but that is okay, there are much worse things. Hope you all are enjoying the crisp fall weather. Love Annie

Welcome to the new website

So this is going to be a blast, once I figure out how to use it!!